Special needs infant boy in UT

Heart to Heart Adoptions, a licensed child placing agency, is looking for a home study approved family prepared and willing to adopt a special needs infant boy.  If you or someone you know are prepared and interested, please contact Donna through the email listed below.

Thanks for considering adoption!

Joseph was born on Oct. 9, 2013. He weighed 4 lbs 11 oz.   Apgars are unknown.  His mother had pretty good prenatal care including an ultrasound that did not show any problems.  He was born with at 37 weeks and 1 day.

He was flown to Primary Children’s Medical Center where he was operated on for an esophageal atresia.  This surgery went well and the esophagus now goes to his stomach and he is able to receive nutrition through an NG (nasogastic tube) or an NJ (nasojejunal) tube.  Though there is some concern that there may be an additional atresion (small passage) between the trachea and esophagus.

An ECHO of the heart showed that Joseph had major problems.  He has
1. Double outlet right ventricle (DORV) with malposition of the great arteries.  Subpulmoic narrowing with hypoplastic pulmonary valve.
2. The left ventricle is hypoplastic with normal systolic function but the mitral valve is hypoplasitc.
3. Many other problems.
Basically the left ventricle is not working well and the right ventricle is pumping to both the lungs and the body.  This is not normal and at least 3 heart surgeries will be necessary to enable the circulatory system to work effectively. It will never be normal.  He has had one of those surgeries, which went well.

An examination by the ENT (Ear Nose and Throat) specialist and the Audiologist showed that there is no ear canal on the left side and the outer ear is missing.    The right side has an ear canal and some movement of the tympanic membrane but diminished.  There is no way of knowing at this point how much hearing Joseph has and whether or not interventions in the future will help.

At this point the lungs seem clear and working well, however he is on oxygen and ventilation, along with frequent suctioning to keep his airway clear.

He has had a MRI which showed asymmetry of the brain (the hemispheres were not the same size) but no other problems. It is also believed, at this point, that he will likely have a normal cognitive outcome, though no one knows for sure.
He has also had an EEG to look for seizure activity.  The results aren’t back yet.

These are the major problems.  There are other minor things such as vertebral abnormalities that may or may not have any effect on his quality of life.

He has been tested for genetic abnormalities and none were found.

He is on Medicaid now, which will cover all his medical expenses from the time he was born.  This will continue until 30 days after he has been released from the hospital.
In the meantime we are applying for disability and will apply for an adoption subsidy that will allow for Medicaid to continue.  For more information on the adoption subsidy see this link.

This is a difficult situation.  Please proceed only if you are home study ready and are willing and able to take care of a handicapped child.  It would be best if you lived in the Salt Lake City, Utah area because Joseph will need the continuity of care provided by Primary Children’s Hospital.

If you are interested please communicate by email with donnap@hearttoheartadopt.com.

DO NOT CALL PRIMARY CHILDREN’S HOSPITAL for information. They legally cannot tell you anything and will not.



Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s