Twenty Orange Jello Packets

This week has been an adjustment. Getting used to the whole community knowing about Ray’s diagnosis has been mixed. We actually had someone telling us about her mother dying of cancer and “gasping her last breath”. It was all I could do to not TKO her right then and there as Ray seemed to shrink inside of his skin as he listened to her nonstop negative chatter about chemotherapy.

The oncologist is very optimistic, but 95% of Ray’s bones are affected by the multiple myeloma. That is why his back hurts so much. The chemotherapy has begun, but at a half dose to protect the function of his kidneys. He is having some nausea, and exhaustion, but otherwise is tolerating the treatment well at this point.

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Lots of neighbors and family and friends have reached out in positive ways to : buy us groceries, send a card, bring a meal, or watch the littles while I take Ray to one of his many appointments…the irony of buying 20 orange jello packets for Ray’s nausea along with pediasure and baby formula made me choke back tears in the store.

Ray being home every day and getting restless…he worked 100 hours a week before…

Watching Ray start his chemo shots and all the multitude of pills, chemo pills…ones to protect his kidneys…ones to prevent infections…downing more pills in a week than he has taken in his whole life, hanging onto the hope of all of this improving his chances at a longer life.

Some moments we function well, other times we are overwhelmed by the enormity of it all.

April 9, from my journal

Esther

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3 comments on “Twenty Orange Jello Packets

  1. God Bless you Esther.  I have known you to be a remarkable,God fearing woman for many reasons.  God knew what he was doing when he brought you into Ray’s life.  You are his strength and his sunshine.Thank you for loving him so much…for giving yourself unselfishly to him and your children.  We are all thankful for you and are praying for both of you.

    From: Brownswissmomma’s Blog To: maryel1101@yahoo.com Sent: Friday, April 10, 2015 11:46 AM Subject: [New post] Twenty Orange Jello Packets #yiv7528061232 a:hover {color:red;}#yiv7528061232 a {text-decoration:none;color:#0088cc;}#yiv7528061232 a.yiv7528061232primaryactionlink:link, #yiv7528061232 a.yiv7528061232primaryactionlink:visited {background-color:#2585B2;color:#fff;}#yiv7528061232 a.yiv7528061232primaryactionlink:hover, #yiv7528061232 a.yiv7528061232primaryactionlink:active {background-color:#11729E;color:#fff;}#yiv7528061232 WordPress.com | Esther posted: “This week has been an adjustment. Getting used to the whole community knowing about Ray’s diagnosis has been mixed. We actually had someone telling us about her mother dying of cancer and “gasping her last breath”. It was all I could do to not TKO her rig” | |

  2. Esther,
    I sent money for your adoption fund awhile ago, please use it for your family during this time of need. My family and I and are praying for you and yours.

  3. Praying for you and Ray and the kids.I can relate to your situation and God will be with you .The greatest part of my husbands illness is it has allowed us a lot of time to spend together that normally doesn’t happen on a daily bases even though its Dr visits and hospital stays its still a blessing .

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