This past few weeks Ray has had a few good days. But one day, he had the BEST day 🙂 He bought tickets for us way back in February before he was diagnosed to see Vince Gill. He was so afraid that he would not feel good enough to go but… 🙂 he felt good enough to drive the hour to the concert, sit a while and even though we left early, he drove home!!
But, the rest of the month the comments to me were … ” I feel like I am living someone else’s life”, as he caught yet another cold, had night sweats, bought a chair/recliner that he could sleep in since in the mornings he is having trouble getting out of bed. And had constant pain.
We went to see the oncologist yesterday for an update on the results of his second round of chemo…they were mixed. His kidney function is almost back to NORMAL!! whoo hoo!! However, his IgG level that dropped so much on a 1/4 dose of therapeutic cytoxin, dropped only slightly on 3/4 therapeutic dose (increased the dosage since his kidneys had improved). His IgG is still at 6700, normal being around 900. His IgM and IgA levels, which indicate how much of other antibodies his marrow are producing were way below normal. He is so easily sick…the numbers tell the story. His overall protein levels dropped closer to normal range.
The hardest news, that I am still digesting… more genetic tests came back that indicate rather than being in the “intermediate risk” category… he is in the “high risk” category. God of course is the final determiner of what actually will happen…but on average what this means is that he has a greater likely hood of having short remissions if they are reached at all…
So NOT what I was hoping for.
This past month I have been binge watching episodes of Heartland, yeah I know sappy and mindless…but I am trying to DEAL. Every day is one more day with Ray, the children are one day older…and one day closer to a cure.
We go to Pittsburgh for a second opinion with a multiple myeloma specialist he may have some idea of how to tweak the treatments specifically for Ray to get him one step closer to having this cancer controlled.
We are living a moment and day at a time…Enjoying the sunshine, watching the rain, hugging the children…
We ask for your prayers…