What is happening with Ray?? Well the last new chemo combination did NOT work either … bummer… So we had a kind of down Christmas waiting to see what was next…
We are at the oncology center every Monday as an all day event for his infusion. The Elotuzumab, name brand Empliciti, combination just received FDA approval in December. It works in a different way than his prior chemo…
Empliciti belongs to a class of drugs known as monoclonal antibodies. It binds to a protein known as SLAMF7, which is commonly found on the surface of myeloma cells. Once bound to a myeloma cell, Empliciti signals and stimulates the patient’s immune system to act against the myeloma cells.
Since nothing else really seems to be working yet, the hope it THIS will work. It had great clinical trials. The multiple myeloma specialist we work with in Pittsburgh was part of the clinical trials for this…so we HOPE.
Last week, Ray got really sick after his first Monday infusion. On Tuesday night, and as usual, he talks involuntarily through the night…always dreaming of fighting or escaping…and he runs a fever. Wednesday was rough… as was Friday… But we won’t know for a month if it is helping. Pray with us!!
It is so hard not to be pursuing an adoption right now. Josiah is almost 3… I do not have a baby in the house… and I am trying to figure out how to deal with knowing there is a need for families and not being one of those families for once.
And boo hiss…our favorite social worker moved on from the agency. She has been with our family for 12 years…and she had such a heart for special needs, being a special needs momma herself. So that has changed as well.
Changes…life is full of changes. It is hard to figure out when life changes, what your role is and how to navigate…